A person living with cystic fibrosis has many important responsibilities, such as making sure they stay on top of their medications, treatments, doctor visits, and so much more. As a 20-year-old ...

Before my son was diagnosed with cystic fibrosis, my life lacked a profound sense of purpose. I did the typical routine a wife and a mom of three does. When I did have time for myself, I’d upload ...

Having an atypical presentation of CF means I stand somewhere between the CF world and the rest of the world — and that makes me feel like I belong in neither. Although my experiences of CF have been ...

Before I was diagnosed with cystic fibrosis and while recovering from surgery for placement of a colostomy bag, I became very ill with influenza (or maybe it was COVID-19; we'll never know for sure).

Hey, everyone! My name is Kaitlyn and I am a 22-year-old who has cystic fibrosis. Just this past May, I graduated from Virginia Commonwealth University with my bachelor’s degree in social work. Moving ...

It was the spring of 2008 when my world flipped upside down. I was 13 years old and just finishing up the 8th grade. I felt like a relatively “normal” kid, despite being diagnosed with cystic fibrosis ...

Preparing for the school year with cystic fibrosis involves careful planning and advocacy. Since my daughter, Desi, started school, I’ve learned about how to best prepare Desi, her teachers, and ...

Although people with these mutations already are approved for Trikafta® in the United States, the study results provide further evidence of the efficacy of the triple-combination therapy for this ...

Author, “Life Happens for You: Backpacking the World With Cystic Fibrosis" When I was a teen and young adult learning to cope with the reality of a life with CF, I would have wished for a story that ...

Balance. Balance is the best way to describe the aspirations of a cystic fibrosis patient. If you have CF, you understand how time can simply slip away. The never-ending breathing treatments, ...

There's a lot of buzz around personalized medicine, but what does it really mean? In the first plenary at NACFC, John P. Clancy, M.D., outlined the history of personalized medicine, where we are now ...

I have to admit I was a little worried about how the talk at school would go. Even though I am well-trained in communicating with kids, I am a mom, first, and, moms worry! It's part of our DNA. The ...