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In a real-world study in South Korea, approved hemophilia A therapy Adynovate zeroed out the number of bleeding episodes for ...
Since earning her ham radio license, columnist G Shellye Horowitz is grateful to have a reliable source of connection and communication.
Columnist Allyx Formalejo's neurodivergence and her husband's hemophilia have helped, not hurt, in finding purpose in their ...
Switching to the extended half-life therapy Elocta, sold in the U.S. as Eloctate, improved control of bleeds among hemophilia ...
The Rare Rewritten campaign hopes to change a misconception about women with X-linked disorders, columnist G Shellye Horowitz ...
Alhemo’s expanded approval drew on explorer8, a Phase 3 study that enrolled about 150 hemophilia A or B patients, who didn't ...
Columnist Allyx Formalejo says that due to ADHD, her tendency to be hyperfocused and need to "help" is really a need for ...
Columnist Joe MacDonald, who has essential tremors, shares with his sons the feeling of having a sometimes visible disorder.
With the launch of a U.S. trial, a treatment using the B-cell medicine BE-101 has been given to a hemophilia B patient for ...
As someone with von Willebrand disease, columnist Jennifer Lynne hopes that trials for VGA039 could lead to a long-sought new treatment.
Columnist Jennifer Lynne shares what it's like to be a woman living with hemophilia — things she wishes doctors would know about the disorder.
Columnist Joe MacDonald says his son Caeleb learned from living with hemophilia how important it is to always have a plan B.
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