Switching to the extended half-life therapy Elocta, sold in the U.S. as Eloctate, improved control of bleeds among hemophilia ...

As someone with von Willebrand disease, columnist Jennifer Lynne hopes that trials for VGA039 could lead to a long-sought new treatment.

Alhemo’s expanded approval drew on explorer8, a Phase 3 study that enrolled about 150 hemophilia A or B patients, who didn't ...

Columnist Allyx Formalejo says that due to ADHD, her tendency to be hyperfocused and need to "help" is really a need for ...

The Rare Rewritten campaign hopes to change a misconception about women with X-linked disorders, columnist G Shellye Horowitz ...

Columnist Joe MacDonald, who has essential tremors, shares with his sons the feeling of having a sometimes visible disorder.

CHMP has advised that Alhemo be approved for people with severe hemophilia A and moderate or severe hemophilia B without ...

Columnist G Shellye Horowitz shares the many miracles she's experienced in her life despite living with the bleeding disorder ...

With the launch of a U.S. trial, a treatment using the B-cell medicine BE-101 has been given to a hemophilia B patient for ...

Columnist Jennifer Lynne shares what it's like to be a woman living with hemophilia — things she wishes doctors would know about the disorder.

Columnist Joe MacDonald says his son Caeleb learned from living with hemophilia how important it is to always have a plan B.

Learning to adapt to constant numbness and tingling in her hands has given columnist Cazandra Campos-MacDonald new insight into her sons.